This was a blog dedicated to another purpose. I hope that info has been wiped clean as I start fresh with the blog with a completely opposite purpose.
It would be something if I could say that my mom was newly diagnosed and here is my journey, but we are 2 months into what is about to be a long road. Not sure if the end goal right now is recovering or just managing my mom's quality of life.
The family members will remain anonymous. There is me- the 40 something year old mother. I have 5 daughters that are One, Two, Three, Four, and Five. One and Two are married. The Hubby is working in Alaska and I'm on my own almost single parenting my family caring for my single mom. Of course there is my mom. The one that all my time and energy is going to be focusing on.
I love to write and right now I miss it terribly. As I've been looking for resources, there are very little for people like me- Primary Caregivers to an ill parent. I've looked for a support group. I can't find one. There are forums online but the thing I found is how in the dark everyone is just like me.
Here is what is on my mom's plate. Sadly, I wasn't all that surprised what she has. I knew it was coming for years. You just aren't prepared for how it will consume you. My mom has COPD, or the word that causes her great distress-Emphysema from years and years of smoking. The COPD is what put mom in the hospital on June 11th. She had a COPD exacerbation that turned into pneumonia. As they were pumping her with fluids, her abdomen expanded and she didn't have to pee out any of the 4 liters of fluid she was given. Upon further research they found she has cirrhosis of the Liver. Basically end stage liver disease. On top of that they thought they found a mass in her abdomen, and they discovered a small lung cancer. The mass has disappeared but the ling cancer is very real. Over the course of that long 7 days of mom's hospital stay, the news grew worse and worse. My sister flew in from Texas and things were difficult. When she was released from the hospital, everything in mom's world and mine had to change. So here we are 2 months later. Mom is in my home. I'm running from appointment to appointment with her as she deals with confusion, neuropathy, now a concussion and on and on.
It has been a long and exhausting couple of months and this is only the start. S o the saga begins....
